Website Team
The website is an initiative of two of the authors of the training « COVID longue : les bases » 🗗, (currently available only in French), though it is independent of the training’s partners.
Together, they wear many hats, from teaching to awareness-raising, through clinical practice, lived experience with rare and orphan conditions and Long COVID, as well as research.
The pace of the website’s development will be unpredictable, dictated by the limitations imposed by the respective conditions of the team members.
Anne Bhéreur, MD, CCFP(PC), FCFP
She has been a family medicine and palliative care physician since 2003 at the CIUSSS du Nord-de-l’Île-de-Montréal and is an assistant clinical professor in the Department of Family Medicine and Emergency Medicine (DMFMU) at the Université of Montréal. After being infected with SARS-CoV-2 in December 2020, she is currently on sick leave, as the infection led to Long COVID.
Despite the limitations associated with Long COVID that keep her from returning to clinical practice, her family’s support allows her to participate, albeit on a limited capacity, in various research projects and committees wearing three hats: as a person with lived experience, a clinician, and a researcher.
Among other roles, she is the medical director of the TeleECHO™ CCAI du Centre hospitalier universitaire de l’Université de Montréal (CHUM)🗗, serves on the Steering Committee of Long COVID Web🔗 and is co-director and patient partner for the Health Systems axis of the network Prévention, recherche, réponses et résilience face aux crises affectant la santé (PR3CRISA🔗). She is also involved in community-based scientific initiatives to provide information on SARS-CoV-2 transmission and raise awareness about Long COVID.
Since 2021, she has been working closely with Prof. Simon Décary of the School of Rehabilitation in the Faculty of Medicine and Health Sciences at the Université de Sherbrooke on the training project and other research projects related to Long COVID and CCCs. Her research has also brought her into contact with numerous scientists in Québec, the rest of Canada, and around the world.
The various research projects in which she is involved are funded by the Canadian Institutes of Health Research (CHIR🔗), Long COVID Web🔗 and Fonds de recherche du Québec🔗 (Health). However, she has no involvement in the management of these research funds.
Anne Bhéreur’s various affiliations are listed here for the sake of transparency. However, these organizations are in no way associated with this website or its content, unless otherwise noted in specific resources. Furthermore, the information presented on this website does not necessarily reflect the position of these various organizations.
Annie-Danielle Grenier, B.Sc.
Annie-Danielle Grenier raises awareness, educates and advocates for the rights of people living with rare and invisible diseases, as she herself lives with several of them.
She does this primarily as an expert patient, a speaker, and through Ma vie de zèbre🔗, a blog that has since become a website. Annie-Danielle launched Ma vie de zèbre in 2013 because she had trouble finding information about hypermobile Ehlers-Danlos syndrome—her only rare diagnosis at the time—and what she did find wasn’t relevant to Québec, a situation she wanted to change.
Annie-Danielle is very active as a patient partner, participating in several projects where she helps bring about policy changes, serves as a co-researcher, educates future healthcare professionals, and more.
Annie-Danielle was a translator and editor (in French and in English) and before that worked many years in show business (on stage but also behind the scenes). She has a bachelor’s degree in psychology, but also studied in Arts and literature and in event production.
Annie-Danielle’s unique life experiences give her a different perspective on things, which she loves to share with others and which she hopes will inspire them. Her motto is that life’s challenges aren’t obstacles to happiness!